Resources
What is Sickle Cell?
Sickle Cell Resources
Sickle Cell Legislative One-Pager FY2025
Meeting with your legislator? Don't go empty-handed! Sick Cells and SC3 have developed this legislative one-pager to help you advocate!
PATHS Sickle Cell Care Resource Guide
A guide to accessing top-tier sickle cell care and essential support services in Prince George’s County.
Care Center Model for SCD Toolkit
A comprehensive toolkit designed to explain the Sickle Cell Disease Care Center Model in detail.
Sickle Cell Disease Fact Sheet 2024
An updated fact sheet with essential information on sickle cell disease, including symptoms, treatments, and key statistics for 2024.
CDC Emergency Department SCD Fact Sheet
Tips for patients and caregivers on navigating the Emergency Department. This fact sheet will give you what you need to know, before you go.
External Resources and Links
Sickle Cell Disease Association of America (SCDAA)
The SCDAA offers support, education, and advocacy for those affected by sickle cell disease.
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American Society of
Hematology
ASH provides research, education, and patient support for blood disorders, including SCD.
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Centers for Disease Control and Prevention (CDC)
Access comprehensive CDC information on sickle cell disease, including data and patient resources.
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Sickle Cell Information for Healthcare Providers
Sickle cell disease (SCD) is a complex group of inherited blood disorders associated with debilitating pain..
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ASH Clinical Practice Guidelines on Sickle Cell Disease
In 2016, ASH initiated an effort to develop clinical practice guidelines on Sickle Cell Disease (SCD).
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Navigating sickle cell disease gene therapy
Gene therapy for sickle cell disease is available to you through FDA-approved therapies..
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Scientific Articles about Sickle Cell Disease
Click the link below to view a list of recent scientific articles generated from CDC programs and activities
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Cell and Gene Therapy (CGT) Access Model
The Cell and Gene Therapy (CGT) Access Model aims to improve the lives of people with Medicaid living..
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Study all About Clinical Research
Clinical research is medical research that studies people to understand health and disease. .
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Pfizer's Sickle Cell Speaks
Pfizer supports the powerful voices of the Sickle Cell Community through their Sickle Cell Speaks campaign.
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Pfizer's Together for Rare
Pfizer is proud to partner with inspiring people to work together to help improve the lives
of those impacted by sickle cell.
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Living with Sickle Cell Disease?
- Stay Hydrated: Drinking plenty of fluids can help prevent painful crises.
- Manage Stress: High stress can trigger symptoms; use relaxation techniques.
- Stay Active: Walking or swimming improves health; don’t overdo it.
- Regular Checkups: Checkups help monitor health and catch complications.